
So far my blog has been boring at best with somewhat amusing little notes written by me when I was feeling inspired. Now it is time to bring the blog home and introduce different parts of my life. So where do I start? I guess a good place to start would be by introducing myself so here we go.....
I am a 29 year old (technically) single mother of one daughter, Piper (age 6). Now with that said I am not single, Tad and I have been together for two and a half years, and Piper is not my only child as via Tad I have the wonderful privilege of being stepmomma to Blake (age 14), Sannie (age 10) and Tristan (age 5). I have a wonderful family who are immensely supportive of me and my dreams as I endeavour to be for them! Lets see what else, in December 2009 after eight years of uphill fights I graduated from Boise State University with my Bachelors of Science in Criminal Justice Administration of Courts and Law.
So now for the part that anyone who already knows me knows....Piper has a rare disease that impacts the most basic of functions of her daily life, she has Eosinophilic Esophagitis or EE (EOS). Our life long fight against this disease she lives with daily has changed me, helped to mold who she is and is impacting the life of all those close to her (such as her siblings). Piper's daily struggles and the rarity of the disease led me to establish a support group where indivduals or families could come and learn about the disease, could get support, could give support and could make friends of others facing similar situations. I run the Eosinophlic Disorders Information and Support Network on facebook due to the simple fact that I have neither the computer knowledge nor monetary capital to build the website that the support group so honestly deserves!
I can guarantee you that in the future you will see many of posts about Piper's disease, and probably quite a few more posts about it than the other children and what is going on with them just due to the fact that Piper's disease can ravage our entire family and my emotional fortitude so easily. Piper is a bright and brilliant child who loves life and will tell you that she wants to be a animal doctor when she grows up and then casually toss in that her body doesn't like her, and she is right....it doesn't.
As I sit here writing this I occasionally hear Piper cry out from her room but she isn't awake, tonite it is a cry of discomfort. Piper's constant companion is discomfort or pain and it breaks my heart to listen to my baby cry while sleeping and know that even then she doesn't get to escape the ravages of a disease to which there is no solid treatment, there is no cure, there is no understanding of how one gets it, how it works, how to cure it or how to treat it. The only understanding we have is that she hurts constantly, that food is her enemy and that her life is anything but simple child's play.............